Indomethacin (Indochron E-R, Indocin) Forum Forum - Indomethacin and headaches

[Guest]

I have been on indomethacin for about a yr for cough headaches<BR>Has anyone else found that your body gets used to this drug and ceases to work<BR>And does anyone else use it for headaches<BR><IMG title="" alt=[Confused] src="confused.gif" border=0> GoldenFrost

[Guest]

Hi, I've just joined this forum and seen your question. <BR><BR>I take Indo for Chronic Paroxsymal Hemiacrania - a type of cluster headache. It's known to be the only effective pain relief for CPH headaches. <BR><BR>I can't say for sure if my body's got used to it but I am suffering from more headaches than I used to when I first started taking it.

[Guest]

Hi. My name is Tonya and I'm new to this board. I'm in the USA (Atlanta, GA). I take Indo for Chronic Paroxsymal Hemiacrania as well. I have been taking them for 7 days. This morning I woke up nauseated with a headache (a different kind of headache...almost like a stress or tension headache) and I felt like I had been hit by a truck. It almost felt like a really bad hangover (well, at least from what I can remember from my younger years!) Anyway, I wasn't sure if this may be a side effect of the drug, or I just ate something that didn't agree with me or maybe have a "bug". <BR><BR>Anyone with these headaches (Paroxsymal Hemiacrania) knows that we can have days/weeks with no pain at all. Well, I was on that pain-free period when I started the drug. So I'm still waiting to see if this drug will help with it. I'll know in a week or so when "the headache" is due back again.<BR><BR>I'll say this...I don't know what's worse...the bad headaches or a constant smaller headache with nausea and weakness! UGH!!

[Guest]

Hi Tonya,<BR><BR>How are the headaches and nausea now?<BR><BR>Since I last posted and said that my headaches were now worse on Indo, I have had a diagnosis for these other headaches and it's not down to the drug at all. In fact, from 20th August I cut out one tablet per day and am managing on a reduced dose. If all keeps going well I'll try and cut out another pill and a week or two.<BR><BR>I do hope the Indo is helping you.....it certainly helped me get my life back when I went on it.

[Guest]

Not sure if you guys come back and check this. I've had chronic paroxysmal hemicrania for 4 years. FINALLY about a year and half ago i was correctly diagnosed (after I had been to 8 different drs) and i was put on indocin. The first year I had to mess with my dosage A LOT. I started on 150mg a day. About 2 months after I started taking it I started having over dose symptoms. SO I was lowered to 100mg a day. About 3 months later I started having over dose side effects. Now I'm on 75 mg a day. A 25 mg in the morning and 50mg at night. This has worked out great. I haven't had a "flare up" in about 6 months =-) I also take prevacid or aciphex for my stomach to protect it from the indocin. The only issue I have is durning the summer when it's hot I NEED to carry around lots of water with me. I think indocin can make you dehydrate faster in hot weather. I feel like I have my life back though. Before I was diagnosed I seriously wanted to die from the pain. It's the worst pain I've ever experienced.<BR><BR>--------------------<BR>Kimberly<BR>

[Guest]

I have had CPH for most of my life having no idea what it was. I get the awful pain on my left side of my head, tearing eye, runny nose, swollen eye, dry mouth (all on same side of face). I take indocin three times a day (25mg per dose). I get no side effects other than being totally free of the headaches. I no longer wake up with thm in the middle of the night. I am happy with Indocin.

[Valerie]

I'm now off Indomethacin all together and find that instead of having an occasional day without a headache, I'm only having occasional days *with* a bad head. I don't know now if I was having side effects or if it was the Occipital Neuralgia that I also have.
I was happy to stay on the pills indefinately if it meant no headaches but I had no check ups from any doctors and was just left to keep getting repeat prescriptions - and I was on a high dose, 50mg x 3 and 75mg slow release at night (225mgs daily). I'd read somewhere that it was recommended that a reduction in the dose is attempted every six months, and I'd been doing this with no success but this time I found the heads had virtually gone.
I'll certainly go back on them if I need to but it's great to be drug-free for the first time in many years.